Site and Contact Information

United States

Atrium Health

Charlotte, North Carolina
Urvi Gautam Desai, MD
Professor, Neurology
Phone: (704)-446-1900 

Virginia Commonwealth University

Richmond, Virginia

Nicholas Johnson, MD, MS-CI
Vice Chair of Research
Associate Professor
Phone: (804)-552-0014

Brigham and Women’s Hospital

Boston, Massachusetts
Vijay Ganesh, MD
Associate Neurologist Instructor
Harvard Medical School

Phone: (617)-732-8046

University of Florida

Gainsville, Florida
Peter Kang, MD
Chief, Division of Pediatric Neurology
Phone: (352) 627-9322

Nationwide Children’s Hospital

Columbus, Ohio
Linda Lowes, PT, DPT
Principal Investigator
Phone: (614)-722-6881

University of Iowa

Iowa City, Iowa

Katherine Mathews, MD

 Vice Chair for Clinical Investigation
Director, Muscular Dystrophy Clinic

Professor of Neurology
Phone: (319)-356-2673

University of California, Irvine

Orange, California

Tahseen Mozaffar, MD
Professor and Interim Chair, Neurology
School of Medicine 

Phone: (714)-456-2525

Kansas University Medical Center

Kansas City, Kansas

Jeff Statland, M.D.
Associate Professor of Neurology
Phone: (913)-588-6970

Kennedy Krieger Institute

Baltimore, Maryland

Kathryn Wagner, MD PhD
Director, Center for Genetic Muscle Disorders
Phone: (443)-923-9525

Washington University

St. Louis, Missouri

Conrad Chris Weihl, MD, PhD
Professor, Neurology
Division of Adult Neurology

Phone: (314)-362-6981

University of Colorado, Denver

Denver, Colorado
Matthew Wicklund, MD
Professor, Neurology
Phone: (303)-724-6386

Europe

Rigshospitalet, University of Copenhagen


John Vissing, MD, DMSci
 Director of Neuromuscular Clinic
and Research Unit

Phone:+45 35452562/1842

Newcastle University, Newcastle upon Tyne



Volker Straub, MD, PhD
Director, John Walton Muscular Dystrophy Research Centre
MRC Centre for Neuromuscular Diseases

Phone: + 0191 241 8649